Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF.
For people living in country areas and live far from CF Clinics, the organisation endeavours to provide extra services such as:
Visits to country areas by a social worker
A freecall telephone service
Educational seminars in country towns to provide up-to-date information on CF to doctors, allied health professionals, and the CF community.
In the Newcastle area, counselling services are provided by our Community Worker who liaises closely with the Paediatric and Adult CF Clinics at the John Hunter Hospital. Practical home support is provided by our part-time Family Support Worker.
Cystic Fibrosis New South Wales (CFNSW) provides the following services to individuals and families living with Cystic Fibrosis in NSW:
Formal and informal peer support
Referrals to other organisations/agencies/services
Practical assistance to navigate services, fill out applications, provide support letters Support programs
Rural CF outreach clinics
Regional outreach program
Exercise self-management program
New diagnosis support
Travel nebuliser loan
Health promotion education
Hospital survival packs
Client and family education Subsidy programs
Emergency health subsidy
Nutritional supplements subsidy
IPTAAS - Hospital Travel and accommodations assistance Community support
CFNSW information events
CF education sessions provided in/to the community Service events
Mum’s wellbeing day/weekend
Dad’s and mates break
Peer support coffee mornings Communication and information
Access to website/e-news/CF connections
Access to experts and specialised Information (mini conventions, workshops, webinars, latest news on treatment, research, clinical trials and evidence base resources)
Airway clearance training program
For further information call 1800 650 614 or email firstname.lastname@example.org.
Contact Cystic Fibrosis Australia
Phone: 02 4960 2922